Basically there are two parts to my ostomy bag. One part is called the wafer and it is about 4 inch square and one side is super sticky so that it will stick to my stomach and it has a hole in the middle of it for my stoma to fit through. It has a flange that the second piece, the bag, can snap on to.
I have worried about my bag every minute of every hour of every day for the last five and a half months.
My stoma is pretty flat - it doesn't stick out very far - and because of this I have had numerous leaks. I have had leaks at my parents house, at church, out on a date with my hot husband, at home, running carpool for dance, at my Dad's 60th birthday party last weekend and the worst one was as I was laying in the bed getting my 6th round of chemo. My nurse had to call over to the hospital to get the necessary supplies because my car (which has a back up bag with all my supplies in it) was having car problems so we took Matt's truck to chemo. I was SO MAD that I had a leak. What they sent over didn't quite work and it leaked as well but thankfully Matt had run home to get my stuff so we changed my bag for a second time as I was getting chemo. It.was.horrible.
I have had my bag leak in the middle of the night. Those times were probably because I tried to rip my bag off in the middle of the night. I hate it so much, this stupid bag, and my subconscious just wants to rip it off my body. Let me tell you, there is nothing worse than waking up in the middle of the night covered in waste. It is indescribably disgusting. This whole experience has been incredibly disgusting.
I get my bag off in a day and a half. I'm so excited, I can hardly contain myself!!
I guess I should be grateful for this stupid bag that saved my life. I am grateful that I am alive. But I can't wait to get it off my body!! Bag free Ashley, can't wait!!
Hang in there...Prayers are headed your way for this bag removal! SO excited for you to begin the recovery stage!! I am sorry for ALL of the hurdles you have had to endure EVERY SINGLE DAY...I am so sorry I have not been a better friend...I pray that you and Matt are on the mend as well as your cute kiddos...This was a seriously rough illness season...Addy and I still have an annoying cough and congestion...You have been in my thought and prayers, Every single day...you have this 'in the bag' and I too and praying that this is it...we need to have wither a little girls night victory party OR a couples date night, for you overcoming so many hurdles...Miss you gorgeous, bag or no bag...You are My Hero...
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